I have asked God a lot of "Why" questions over the past 5 weeks. Why does Aiden have to hurt? Why did you think we could handle this? Why can't I have one good night of rest? Why does my family have to be separated again? The list goes on.
And then I am reminded of my son and the pain he has endured in his short life. It breaks me and snaps me out of my self pity. I have definitely taken the good health of my children for granted. This sweet boy has had to endure this pain for far too long. He is the toughest kid and we are doing everything we can do to help him.
Why did God think our family could handle this? I don't know the answer to this question but I know that God has called us to this, and He will guide us through it.
We have been home for 3 weeks now. We were told that our specialist wouldn't see us until we had been home for at least 6 months so that we could have time to acclimate. You can imagine our surprise when we received an email from our doctor on a Tuesday asking us if we could be in Cincinatti by Friday for a week of testing and consulting with her! God is with us every step of the way.
The treatment we are having to give Aiden while here (and it is now looking like for many years to come) is not a one person job. We were so sad that David could not be with us due to work, but so thankful that my mom dropped everything and came when I told her I needed her with me. God took care of these details long before I started worrying about them.
This week has been tough so far. We received some discouraging news from some of Aiden's X-rays and are preparing ourselves for more discouraging information about his kidneys as we have only been told so far that there are abnormalities in both.
On the positive side, we are seeing Aiden go longer periods of time feeling well and playing like a two year old boy should be. We have been blessed to have friends open their home to us for our stay here instead of staying in a hotel for a week. We have also been able to have some fun doing different things around town.
So why has God brought us on this journey of bringing Aiden home? What if we had said no because of inconvenience, lack of money, etc. If we had not obeyed His calling, our sweet boy would still be suffering with no hope, which I can't even bring myself to think about. Is this an easy journey? No. But look at this precious face and tell me it isn't worth it. 😊